Celine Dion’s sister says singer is struggling to find medicine amid health battle – TheFantasyTimes

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By Jitin Gambhir

Celine Dion’s sister says singer is struggling to find medicine amid health battle

Celine Dion’s sister, Claudette Dion, has expressed concerns about the singer’s struggle to find effective treatment for her diagnosis of stiff person syndrome. In an interview with Le Journal de Montreal, Claudette disclosed that despite working with leading researchers in the field, Celine, who is 55 years old and a Grammy winner, has seen minimal improvement in her health. Claudette stated, “We have been unable to find any medication that provides relief, but it is crucial to maintain hope.” Stiff person syndrome is a rare and progressive neurological disorder characterized by stiffness in the muscles of the torso, arms, and legs. It affects approximately one in a million individuals. Celine Dion has been unable to find any medication that alleviates her symptoms of stiff person syndrome.

Celine Dion’s sister Claudette Dion said that the singer has been struggling to find treatment for her stiff person syndrome diagnosis.

During an interview with Le Journal de Montreal, Claudette revealed that despite working with “the top researchers in the field,” the Grammy winner, 55, has seen little improvement in her health.

“We can’t find any medicine that works, but having hope is important,” Claudette said.

According to the National Institutes of Health, stiff person syndrome is a “rare, progressive neurological disorder” that can cause stiff muscles in the torso, arms and legs.

It effects about one in a million people.

Celine Dion
Celine Dion “can’t find any medicine” that helps her stiff person syndrome.
Getty Images

Following the diagnosis, Celine was forced to cancel her Courage World Tour, which Claudette said was necessary for her chances of rehabilitation.

“I honestly think that she mostly needs to rest. She always goes above and beyond, she always tries to be the best and top of her game,” she said. “At one point, your heart and your body are trying to tell you something. It’s important to listen to it.”

Their sister Linda has since moved into Celine’s Las Vegas home to act as a caretaker for the hitmaker.

Celine Dion
The Grammy winner’s sister Claudette Dion recently shared an update on her health.
Getty Images for Global Citizen

“When I call her and she’s busy, I speak to my sister Linda who lives with her and tells me that she’s working hard,” Claudette explained. “She’s listening to the top researchers in the field of this rare disease as much as possible.”


Despite the lack of improvement in Celine’s condition, the family still has “trust” that things will get better.

In May, the “My Heart Will Go On” songstress announced “with tremendous disappointment” that she was canceling over 40 of her tour dates due to the debilitating disorder.

Celine Dion
The singer announced her diagnosis in December 2022.
NBCU Photo Bank via Getty Images

“I’m so sorry to disappoint all of you once again. I’m working really hard to build back my strength, but touring can be very difficult even when you’re 100%,” she wrote via Instagram.

“It’s not fair to you to keep postponing the shows, and even though it breaks my heart, it’s best that we cancel everything now until I’m really ready to be back on stage again,” she continued.

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“I want you all to know, I’m not giving up… and I can’t wait to see you again!”

Celine Dion
She has since canceled her world tour to focus on her recovery.
Getty Images

While she was revealed her diagnosis with the disease in December 2022, the singer said at the time that she had been “dealing with problems with [her] health for a long time.”

The “Because You Love Me” artist previously had to delay her Las Vegas residency in October 2021 after experiencing “severe and persistent muscle spasms.”

While she was eventually able to return to the stage, it’s unclear when — or if — Celine will be able to perform again.

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